First day of school

With the first day of school came a new diabetes schedule. Left behind were the late nights and sleep in mornings. We started the new schedule a few days before school started, but I still knew the lazy days of summer that fit her current diabetes protocol was sure to change with the active life of a new 4th grader. I knew she would be more active so the morning of the first day I reduced her fast acting insulin. Mid morning she had her provided snack, but at lunch time a bg of 70. 2nd day of school, reduced insulin even more, usual snack and a lunch bg of 63. On the plus side, bg's have been normal at dinner which means her dose is good at lunch as well as the carbs in her afternoon snack. Tomorrow I'll make another reduction to see if that helps with the low blood sugar at lunch.

The D-O-C

When your child is first diagnosed with diabetes your world is set into a spin, especially if you have no previous exposure to the disease.  In my case, my step dad was diagnosed when I was in my early teens and I had gestational diabetes when I was pregnant with one of my children.  So, I had a little understanding of the physiological aspect of type 1 diabetes.  However, when my daughter was diagnosed I still felt like a steam roller had flattened me.  My new job was going to be her artificial pancreas.  I was going to have to measure and calculate what she ate.  I was going to need to determine the amount of insulin she needed based on her blood sugar levels and consumption of food; all while being sure to account for her physical activity.  I wasn't sure if I was the best person for this job.  What if I messed up?  What if I made a mistake?  And then there was the fact that our entire lives were flipped upside down.  This disease affects the entire family.

We were and are very fortunate to have a supportive "village" that immediately jumped in to help us make sense of this situation.  But what we needed too were other families who lived with this disease, who had been where we were.  I began to search the Internet for more information about living with this disease and stumbled across a mother's blog, D-Mom, The Sweet Life with a Diabetic Child.  I read her current and older posts.  Her blog led me to another d-mom's blog, and so and and so on.  Their blogs also led me to Facebook groups and Twitter events.  This is the Diabetes Online Community (#DOC).

Connecting with the DOC helped me know what to expect when my daughter returned to school after her diagnosis, helped me figure out what a 504 plan was, and led me to volunteering and advocating...they led me to start this blog.  From the DOC I've gotten advice, support, and understanding from other parents who live similar lives.  From the DOC, Alyssa has built relationships with other children who are like her....who have to prick their fingers and take injections and who feel bad when there sugar levels aren't just right.  (And they've helped us choose what pump we will get)

If you or your child is newly diagnosed, my advice to you is to connect through blogs and social media with others who have been where you are.  I'm sure glad I did!