Alyssa's Journey with Type 1 Diabetes





An outlet, a diary of sorts, a place for thoughts, a place to connect,
an expression of feelings about Juvenile Diabetes......



Showing posts with label pediatric endocrinologist. Show all posts
Showing posts with label pediatric endocrinologist. Show all posts

Wednesday, July 18, 2012

Changes

The endocrinologist made a few changes to Lu's regimen because her hemoglobin A1C had gone up .2 since our last quarter visit.  Yesterday was the first day of the dose change and also her 3 hour cheer practice.  I was a little nervous to give her the higher doses with breakfast, but didn't want her to spike before the 10:30 practice time.  Her Lantus was increased from 9 units, to 10 units and her Novolog rate was increased from 1 unit for every 20 grams of carbohydrates, to 1 unit for every 15 grams of carbohydrates.  I gave her the updated dose with breakfast at 7:30 and on the way to practice, checked her blood glucose levels.  258 at 10:15.....we are back to those post breakfast spikes where the insulin is taking a little longer to kick in.  Practice immediately started with warm-up and practicing jumps.  After about 20 minutes of that, they started tumbling and that lasted about 30 minutes.  At 11:30, we did a recheck of her bg's and she was at 115.  She had a snack, apple slices, peanut butter crackers and low-calorie Gatorade.  They practiced their competition routine and around 1:00, she gave me 'the look', which I knew meant that she didn't feel good.  Re-check, bg's 62.  Quick juice and a snack and the timing was good because the team decided to take a break.  10 minutes later,she perked right back up and finished practice with energy left over.




Monday, July 16, 2012

I thought I had it together.....ugh

So, today was our quarterly visit with the pediatric endocrinologist.  Interesting morning, to say the least.  To start things off, I didn't sleep well last night, so when the alarm rang this morning, I didn't want to get up.  Thinking maybe I shouldn't have....  We did Alyssa's normal morning regimen and she asked if she could have a little coffee this morning. So, since she was up earlier than she had been in a few weeks I thought a little 'children's coffee' might help her get going.  I measured the milk, sugar free creamer and mixed them with a little coffee.  I accounted for that with her Novolog dose and we hit the road to drop her brother off at his first day of driver's ed and then on the see the doctor.

When the nurse called us back, she wanted to check Alyssa's blood glucose levels and I thought for sure it was going to be within range.  At this time it had been 2 hours since she had eaten....but a reading of 405.  I was floored!  She hasn't had a reading like that is such a long time.  Re-check...305...better, but what the heck??  I felt terrible.... I mean, I carefully measured her food, counted the carbohydrates, and calculated the insulin dose.... all of a sudden I felt like the worst mom in the world.  I mean, I know realistically that things like this happen and diabetes is a very tricky disease.  Sometimes bg's fluctuate for reasons out of our control like stress or excitement.  I know Alyssa and I both were excited to discuss the insulin pump with the endo.  Another blow, her A1C was 8.2, up from the last visit.  Ideally, they would like to see it 8 or less.  Ugh!

Well, on a happier note we did discuss the pump.  We are scheduled for an insulin pump class on Tuesday evening.  After we pick out the pump we want, the next step will be to contact the insulin pump company to start the purchasing process and see what pump and how much our insurance company will pay for.  I'll go into more detail in another post about the process of getting Alyssa started on the pump and the steps we'll take in the near future.

Tuesday, June 5, 2012

Packing for Grandma's

Since Alyssa's diagnosis, the only people she has been left with are her two older brothers and her grandmothers.  On Thursday, my hubby and I will be leaving for the Florida Keys to celebrate our 18th wedding anniversary.  Ahhhh.....4 sun-filled days in paradise!!

Before Lu's DX, all I had to pack were her clothes when she'd spend the night away from home.  Now, packing takes much more preparation.

Alyssa's Packing List

*Diabetes supplies (meter, strips, lancets, alcohol swabs, syringes, & insulin)
*Emergency Kit for lows (Glucagon, smartie candies, and juice boxes)
*4 Breakfasts, 4 lunches, 4 dinners, and 24 snacks
 (I pack snacks and meals that I prepare ahead of time that have the exact amount of carbs that she needs for each meal)
*sugar free drinks & water bottles to mix sugar free Kool Aid in
*Schedule
(I type up her schedule and instructions for what to do in the event of highs or lows and add the emergency endocrinologist's number)
*clothes
*favorite pillow & stuffed animal
*games
*movies
*toiletries

Our car will be loaded down on the way to the airport until we drop her off.  What's funny is that everything that I am taking can fit into 1 rolling carry on bag!